Poetry: Grandma Said

Grandma said

the poor go first,

kids like me,

she said–

if the war

don’t end–

but I was

too delicate,

too pretty,

too likely to kiss

the gook’

if he was

cute.

Rob Goldstein, March 2019

 

 

 

8 Simple Tips For Living A Better Life With MS (or any disease really)

These are excellent tips for coping with any kind of chronic illness from Danny at Dream Big, Dream Often.

Dream Big, Dream Often

Danny

8 Simple Tips For Living A Better Life With MS

My symptoms began in 2007 while I was on vacation in Florida.  Little did I know at that time that my world would change forever with a diagnosis of Multiple Sclerosis.  I have experienced an array of symptoms and have found some fairly successful habits I have used to help offset the side effects of MS.  Here are some simple tips for living a better life with MS:

 Walk every day

One of the goals I have for myself is to walk every single day without exception.  Evelina and I have a dog and he requires being walked which guarantees I’ll be outside at some point taking a stroll.  For those who cannot walk I recommend standing up and sitting down or maybe doing leg and arm lifts.  Even if you are confined to a wheelchair, you can do some…

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Fear of Sharks Can Get In the Way of A Great Swim

From Dream Big, Dream Often

Dream Big, Dream Often

Danny

Fear of Sharks Can Get In the Way of A Great Swim

I heard some people talking this past weekend about never swimming in the ocean because that’s where sharks live.  It was a funny conversation, but the lady talking was being sincere in expressing her fear.  She explained that if she never gets in the water she will never have to worry about getting eaten by a shark.  And I cannot argue with her logic.

But what about the coolness of the water on the skin?  What about experiencing the awesomeness of an afternoon swim?  Maybe a little belly surfing?  If her mind doesn’t change she will never be eaten by a shark, but she will also never experience the greatness of the water.

Listening to her talk got me to thinking about fear in general.  I wonder how many people think like this on other topics.  If I…

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My Daily Observation – An Update: 2/3/18

From Danny at Dream Big, Dream Often

Dream Big, Dream Often

It has been quite a while since I have given an update on my life living with MS so I thought I’d share how things are going.  I know for most of your this type of update does impact you, but I do have followers who live with the disease and I want to encourage and support them in any way I can.

Danny's iphone 696 My first day hooked up – 2011

Danny's iphone 698 The infusion happened over 5 days and they leave this in your arm…

Danny's iphone 700 Finally leaving the hospital – 2011

I have an appointment with the neurologist at the end of March to follow-up on a new medication I am beginning in April.  The medication is called Ocrevus and is an infusion I’ll take every six months in the hospital or doctor’s office.  The initial treatment is administered in two sessions, two weeks apart. At each of these sessions, I will receive 300…

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