8 Simple Tips For Living A Better Life With MS (or any disease really)

These are excellent tips for coping with any kind of chronic illness from Danny at Dream Big, Dream Often.

Dream Big, Dream Often

Danny

8 Simple Tips For Living A Better Life With MS

My symptoms began in 2007 while I was on vacation in Florida.  Little did I know at that time that my world would change forever with a diagnosis of Multiple Sclerosis.  I have experienced an array of symptoms and have found some fairly successful habits I have used to help offset the side effects of MS.  Here are some simple tips for living a better life with MS:

 Walk every day

One of the goals I have for myself is to walk every single day without exception.  Evelina and I have a dog and he requires being walked which guarantees I’ll be outside at some point taking a stroll.  For those who cannot walk I recommend standing up and sitting down or maybe doing leg and arm lifts.  Even if you are confined to a wheelchair, you can do some…

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A Moment of Chronic Pain

I have a gizmonic exercise bike I found on the sidewalk last year.

I say ‘gizmonic’ because it has a computer that monitors heart rate and caloric output.

It also has games.

I brought it home and slipped some batteries into it and
nothing.

It looked like the computer was broken.

The fix was simple.

The springs that held the batteries in place weren’t making contact
with the batteries.

I stretched them and Bingo!

A fancy exercise bike for the time it took me to stretch
some springs.

My favorite game is the  ‘Calorie Destroyer.

The faster I pedal the more ammo and mobility my gun has.

Last week I raised the seat for better leg extension.

Bad idea.

As I reached level four I felt a twinge of pain in my lower back.

Did that stop me? Of course not!

I was taught to ignore pain.

The twinge became a sharp pain.

The next day I felt stiff.

Friday I walk across the City to therapy.

I began to dress.

There’s  a small chair in front of the door to bedroom closet.

I needed a jacket so I moved the chair and felt something pop; a jolt
of pain raced up my spine and down my legs.

Did I decide not to walk over five miles to my therapist, most of it up hill?

Of course not!

I was in so much pain that when I got home I took two aspirin and a double dose of ‘Clonopin.’ Most docs use benzos to treat severe spasms of the lower back. (I don’t advise anyone else to ever do this without consulting a doctor.)

I laid down and entered the world of pain.

Survival in the world of pain means finding the ‘right’ position: a way to arrange one’s body to cut severe pain.

Finding the ‘right’ position and holding it for as long as possible was the focus of all of my energy and concentration.

I’d find a position only to have to find another position five minutes later.

This meant having more pain to find respite in less pain.

For all my emotional pain I have never had to deal with severe medical pain.

After it was over I had a deeper appreciation for the suffering and courage of
people in chronic pain.

Rob Goldstein 2015-2018

First published November 2015
Revised November 2018

The outsider

from TheFeatheredSleep

TheFeatheredSleep

38638686_1843766582406138_8072796370370560000_nshe wasn’t like them, so they didn’t like her

to her face they smiled and said ‘nice things’

which she knew were lies

behind her back they laughed

and made dirty-lezzie jokes

because it made them uncomfortable

to think about what they thought she did

it made them feel a bit disgusted

like when you stand too close

she looked like them in superficial ways

wore at times, nicer dresses and had longer hair

the fact that she liked girls wasn’t in their

comfort zone

when it was summer time they had

BBQ’s and invited all the neighborhood kids

wondering if she would be safe around minors or

would do something inappropriate

when they started a mommy running club

she wasn’t invited because she was neither

a mommy or someone they wanted to

bare their secrets with

what would she understand of husbands?

maybe their husbands liked her

because…

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Driftwood

Poetry from ‘The Feathered Sleep